Main Article Content
Quality of Life;, Dementia;, Content Validity;, Face Validity, Back-translation
Background and aim of the work. The assessment of Quality of Life through validated tools allow to improve level of assistance for people suffering from Dementia. To our Knowledge in Italian language seem to be absent a tool to evaluate mild and moderate dementia, consequently underestimating and underrating needs of this specific target. We show an Italian pilot version of the DEMQOL-PROXY (specific for mild and moderate Dementia) testing some psychometric properties as: back-translation, content validity and face validity in Italian language. Method. A back-translation by two bilingual authors was presented. Was enrolled an expert panel to test Content Validity composed by eight Medical Doctor and a panel of six participants was recruited to assess Face Validity (three professional caregivers and three family caregivers) related to patients with moderate Dementia (with 10 to 20 MMSE, mild and moderate Dementia). Results. Each item has a degree of agreement between experts of more than 70% and the Total CVI score is .90 (90% of agreement). So, in line with these results we can accept the version of items proposed. As regard Face Validity, the items of the instrument seem to be clear, without difficulty and there are no questions consiedered offensive or irritating. Conclusion. The Italian version of the DEMQOL-PROXY showed good psychometric properties: its structure and the results it leads to are similar to the original version and to the other translations produced so far. For this reason, we consider this paper as a methodological bridge for a future complete Italian Validation.
2. Martyr A, Nelis S M, Quinn C, et al. Living well with dementia: a systematic review and correlation meta-analysis of factors associated with quality of life, well-being and life satisfaction in people with dementia. Psychol Med 2018; 48(13): 2130-2139.
3. Bullinger M. The concept of quality of life in medicine: its history and current relevance. Z Evid Fortbild Qual Gesundhwes 2014; 108(2-3): 97-103.
4. Klassen A C, Creswell J, Plano-Clark V L, Smith K C, Meissner H I. Best practices in mixed methods for quality of life research. Qual Life Res 2012; 21(3): 377-380.
5. Linee di indirizzo Nazionali sui Percorsi Diagnostico Terapeutici Assistenziali per le demenze 2017;http://www.salute.gov.it/portale/temi/p2_6.jsplingua=italiano&id=2402&area=demenze&menu=vuoto
6 Bowling A, Rowe G, Adams S, et al. Quality of life in dementia: a systematically conducted narrative review of dementia-specific measurement scales. Aging Ment Health 2015; 19(1):13-31.
7. Cartabellotta A, Eleopra R, Quintana S, et al. Linee guida per la diagnosi, il trattamento e il supporto dei pazienti affetti da demenza. Evidence 2018; 1-7.
8. Bianchetti A, Cornali C, Ranieri P, Trabucchi M. Quality of life in patients with mild dementia. Validation of the Italian version of the quality of life Alzheimer's disease (QoL-AD) Scale. Original Investigation. J Gerontol A Biol Sci Med Sci 2017; 65: 137-143.
9. Gomiero T, Weger E, Marangoni A, et al. Misurare la qualità della vita nella disabilità intellettiva con demenza: una valutaazione psicometrica della versione italiana della scala Quality of Life in Late-stage dementia (QUALID). J Alzheimrs Dis 2011; 1(2):2-5.
10. Smith S, Lamping D L, Banerjee S, et al. Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology. Int J Technol Assess Health Careint 2005; 9(10): 1-93.
11. Lucas-Carrasco R, Lamping D L, Banerjee S, Rejas J, Smith S C, Gómez-Benito J. Validation of the Spanish version of the DEMQOL system. Int Psychogeriatr 2010; 22(4): 589-597.
12. Hambleton R K. Translating achievement tests for use in cross-cultural studies. Eur J Psychol Assess 1993; 57- 68.
13. Hambleton R K. guidelines for adapting educational and psychological tests: A progress report. Eur J Psychol As- sess 1994; 229-244.
14. Davis L L. Instrument review: Getting the most from a panel of experts. App Nurs Res 1992; 5(4): 194-197.
15. Grant J S, Davis L L. Selection and use of content experts for instrument development. Res Nurs Health 1997; 20(3): 269-274.
16. Wynd C A, Schmidt, B, Schaefer, M A. Two quantitative approaches for estimating content validity. Wes J Nurs Res 2003; 25(5): 508-518.
17. Polit D F, Beck, C T. The content validity index: are you sure you know what's being reported? Critique and recommendations. Res Nurs Health 2006; 29(5): 489-497.
18. Smith S C, Lamping D L, Banerjee S, et al. Development of a new measure of health-related quality of life for people with dementia: DEMQOL. Psychol Med 2007; 37(5) 737-746.