Potential limitations of activity tracking devices in monitoring effects of treatment for sarcoidosis

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Rebecca Klein
Marc Judson
Briana Barkes
Lisa Maier
Joyce Zeigler
Daniel Culver
Nadera Sweiss
Edward Chen
Nabeel Hamzeh
Jan Grutters
Dominique Valeyre
Noopur Singh
Ginger Spitzer
Tricha Shivas
Robert Baughman


Sarcoidosis, Activity tracker, Patient compliance, Quality of life


Introduction:  activity tracker device usage can help analyze the impact of disease state and therapy on patients in clinical practice.  factors such as age, race, and gender may contribute to difficulties with using such technology. 

Objective: we evaluated the effect of age, race, and gender on the usability of the Fitbit OneTM activity tracking device in sarcoidosis patients and the impact of device on sarcoidosis patients’ activity.

Method: patients participated in a six-month prospective study where were asked to wear a Fitbit OneTM activity tracker daily. device usage education was provided at study enrollment.  weekly data download and submission reports to participating centers was required. patients were asked to complete a post-study questionnaire reviewing the motivation of the activity tracker on daily activity.

Results: at three centers, 91 patients completed all study visits and the post study questionnaire with a mean age of 55 and 75% were female and 34% african american. accurate downloads occurred >75% of the time, regardless of age, race, or sex. results of the post-study questionnaire did not show a correlation between the likelihood of wearing the device and motivation to increase activity.

Conclusion: using an activity tracking device to evaluate and/or correlated with quality of life (QOL) instruments may prove beneficial for gathering more data on patients.  age, race, and gender did not contribute to differences in usability among sarcoidosis patients. 

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(1) Strookappe B, Swigris J, de Vries J et al. Benefits of Physical Training in Sarcoidosis. Lung 2015; 193(5):701-708.
(2) Judson MA. Quality of Life in Sarcoidosis. Semin Respir Crit Care Med 2017; 38(4):546-558.
(3) Obi ON. Health-Related Quality of Life in Sarcoidosis. Semin Respir Crit Care Med 2020;10-1710080.
(4) Allet L, Knols RH, Shirato K et al. Wearable systems for monitoring mobility-related activities in chronic disease: a systematic review. Sensors (Basel) 2010; 10(10):9026-9052.
(5) Pericleous P, Van Staa TP. The use of wearable technology to monitor physical activity in patients with COPD: a literature review. Int J Chron Obstruct Pulmon Dis 2019; 14:1317-1322. doi: 10.2147/COPD.S193037. eCollection@2019.:1317-1322.
(6) Sehgal S, Small B, Highland KB. Activity monitors in pulmonary disease. Respir Med 2019; 151:81-95. doi: 10.1016/j.rmed.2019.03.019. Epub@2019 Mar 28.:81-95.
(7) Root ED, Graney B, Baird S et al. Physical activity and activity space in patients with pulmonary fibrosis not prescribed supplemental oxygen. BMC Pulm Med 2017; 17(1):154-0495.
(8) Sehgal S, Chowdhury A, Rabih F et al. Counting Steps: A New Way to Monitor Patients with Pulmonary Arterial Hypertension. Lung 2019; 197(4):501-508.
(9) Harper LJ, Gerke AK, Wang XF et al. Income and Other Contributors to Poor Outcomes in U.S. Patients with Sarcoidosis. Am J Respir Crit Care Med 2020; 201(8):955-964.
(10) Baughman RP, Field S, Costabel U et al. Sarcoidosis in America. Analysis Based on Health Care Use. Ann Am Thorac Soc 2016; 13(8):1244-1252.
(11) Pew Research Center. Pew Research Center Internet and Mobile Fact Sheets: Mobile Fact Sheet. 2020.
(12) Bommakanti KK, Smith LL, Liu L et al. Requiring smartphone ownership for mHealth interventions: who could be left out? BMC Public Health 2020; 20(1):81-7892.
(13) Bentley CL, Powell L, Potter S et al. The Use of a Smartphone App and an Activity Tracker to Promote Physical Activity in the Management of Chronic Obstructive Pulmonary Disease: Randomized Controlled Feasibility Study. JMIR Mhealth Uhealth 2020; 8(6):e16203.
(14) Drent M, Elfferich M, Breedveld E et al. Benefit of Wearing an Activity Tracker in Sarcoidosis. J Pers Med 2020; 10(3):97.
(15) Brickwood KJ, Watson G, O'Brien J et al. Consumer-Based Wearable Activity Trackers Increase Physical Activity Participation: Systematic Review and Meta-Analysis. JMIR Mhealth Uhealth 2019; 7(4):e11819.
(16) Evenson KR, Goto MM, Furberg RD. Systematic review of the validity and reliability of consumer-wearable activity trackers. Int J Behav Nutr Phys Act 2015; 12:159. doi: 10.1186/s12966-015-0314-1.:159-0314.
(17) CBS news. Fitbit users find creative hacks to cheat the system. 2020.
(18) Hunninghake GW, Costabel U, Ando M et al. ATS/ERS/WASOG statement on sarcoidosis. American Thoracic Society/European Respiratory Society/World Association of Sarcoidosis and other Granulomatous Disorders. Sarcoidosis Vasc Diffuse Lung Dis 1999; 16(Sep):149-173.
(19) Baughman RP, Judson MA, Beaumont JL et al. Evaluating the Minimal Clinically Important Difference of the King's Sarcoidosis Questionnaire (KSQ) in a Multi-center, Prospective Study. Ann Am Thorac Soc 2020; 18:477-485.
(20) Judson MA, Costabel U, Drent M et al. The WASOG Sarcoidosis Organ Assessment Instrument: An update of a previous clinical tool. Sarcoidosis Vasc Diffuse Lung Dis 2014; 31(1):19-27.
(21) Van der Vaart R, Drossaert C. Development of the Digital Health Literacy Instrument: Measuring a Broad Spectrum of Health 1.0 and Health 2.0 Skills. J Med Internet Res 2017; 19(1):e27.
(22) Holt KA, Overgaard D, Engel LV et al. Health literacy, digital literacy and eHealth literacy in Danish nursing students at entry and graduate level: a cross sectional study. BMC Nurs 2020; 19:22. doi: 10.1186/s12912-020-00418-w. eCollection@2020.:22-00418.